NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with urgent unmet needs, including Spinocerebellar Ataxia (SCA).
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We’re honored to have worked with Bill Nye the Science Guy to launch the largest Ataxia awareness campaign to-date!
In the series of videos, Bill Nye opens up about his personal connection to Ataxia. He lost his father to Ataxia and has many family members who are affected, including his sister and brother. He teaches people about Ataxia in his classic “science guy” style with simple information and light humor.
Check out all his videos at www.ataxia.org/BillNye.
Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:
Thank you for 15 Years of Chuck and Duck! We guarantee you will get a kick out of this! For the15th year, Charlton Heights Elementary
Session focused on the importance of funding research and approving new treatments for rare diseases, especially those with no FDA-approved treatment options like Spinocerebellar Ataxia
The well-known science educator joins with the National Ataxia Foundation on campaign to build broad understanding of Ataxia, a progressive brain disease that impacts a
This designation is important to raising awareness of ataxia, ataxia research, and the search for a cure. Minneapolis, MN (September 20, 2024) – The National
Cooking with Troy A webinar series for confidence in the kitchen. UPCOMING SESSIONS MEET CHEF TROY PAST SESSIONS DONATE Cooking with Troy is a new
Guest Author: Ellie Martin Seeking effective methods for healing and growth is significant for rehabilitation. Equine Assisted Therapy, a unique form of therapy that provides
Ataxia doesn’t wait—and neither should treatment. NAF has launched a petition on Change.org calling on the FDA to prioritize treatment options for rare diseases with
If you’ve ever felt overwhelmed trying to understand complex medical research, you’re not alone. That’s why SCAsource was created—to make Ataxia research accessible to everyone.
My name is Neyveth Duarte and my dad was officially diagnosed with Ataxia earlier this year. My dad is my hero and he is going
I grew up in a small & rural town of about 3,500 people in central Minnesota. I was raised in a blue-collar middle class home,
Submitted by Theresa Nelson, Executive Director at Ataxia Connection It is an exciting opportunity for our organization, Ataxia Connection, to travel and attend the Annual
Submitted by Mark Holdenried Attending the 2025 Annual Ataxia Conference (AAC) in Las Vegas was a meaningful and energizing experience. From the travel experience to
EASTERN TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is
CENTRAL TIME ZONE Thinking about joining a clinical trial but unsure what it really involves? The Weill Cornell Medicine Department of Genetic Medicine team will take you behind the scenes
EASTERN TIME Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is led
CENTRAL TIME ZONE During this webinar, an expert will join us to take a look at Acute Cerebellar Ataxia, including the typical diagnostic journey for those affected, what to expect
Our generous donors help us fund promising Ataxia research and offer support services to people with Ataxia. Your gift today will help us continue to deliver on our mission to improve the lives of persons affected by Ataxia.
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