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Our Vision:

A World Without Ataxia.

Ensuring no one experiences Ataxia alone, until no one experiences Ataxia, period.

Our Mission

To accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Bill Nye: The Ataxia Advocate Guy

We’re honored to have worked with Bill Nye the Science Guy to launch the largest Ataxia awareness campaign to-date!

In the series of videos, Bill Nye opens up about his personal connection to Ataxia. He lost his father to Ataxia and has many family members who are affected, including his sister and brother. He teaches people about Ataxia in his classic “science guy” style with simple information and light humor.

Check out all his videos at www.ataxia.org/BillNye.

Become a Member of NAF for FREE!

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Join the growing number of people that want to stay connected with the Ataxia community! Sign up today. It only takes a few moments. Our members receive:

  • News and research opportunities about their specific type of Ataxia as it becomes available.
  • Early access to free webinars
  • NAF’s eNewsletter and Generations publications. 

NAF BLOGS

Recent NAF News

Impact Story

Dodgeball for a Cause

Thank you for 15 Years of Chuck and Duck! We guarantee you will get a kick out of this! For the15th year, Charlton Heights Elementary Read More…

Recent Blogs

2025 NAF Research Grants

We’re proud to announce that we funded 18 research grants for 2025 totaling $730K!  For the funding term of March 1, 2025 – February 28, Read More…

Traveling with Ataxia

Guest Author: Ellie Martin Traveling can be stressful, but it gives us the opportunity to go exploring. Whether it’s traveling to meet a friend, going Read More…

Recent Member Stories

Lim Siah Gim

My challenge and journey with Ataxia I was born youngest in a family of 11. From teen I witnessed my father (who was about 50 Read More…

Shawn Davis

Why I Wrote a Children’s Book to Explain Ataxia Well, it turns out your brain’s cerebellum is super important… A couple of years ago I Read More…

Roberta C

I am the mother of a child with SCA (type 14). My daughter who is now 12 had her first symptom when she was 5. Read More…

Ken

My Ataxia journey started some years ago. Even before I was diagnosed, my wife commented that I walked like “Tipsy Mc Staggers”, and I had Read More…

WHAT IS ATAXIA?

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EVENTS

Apr 19, 2025 10:00 am - 12:00 pm
Twin Cities Support Group

CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Apr 19, 2025 10:30 am - 12:30 pm
St. Louis Coffee & Conversation Social Meeting

CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Apr 19, 2025 11:00 am - 01:00 pm
Northern California Support Group Meeting

PACIFIC TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

Apr 19, 2025 12:30 pm - 02:30 pm
Wisconsin Ataxia Warrior Support Group Meeting

CENTRAL TIME ZONE Support group meetings are a great way to socialize and learn with others who are affected by Ataxia. We welcome you to join us! The discussion is Read More…

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